Monday, March 7, 2016

2015 - 30 Things About My Invisible Illness You May Not Know

30 Things About My Invisible Illness You May Not Know
* The following has changed since 2015, stay tuned for updated "30 Things"

1. The illness I live with is: Anemia, Chronic Fatigue, Fibromyalgia (that I know of)

2. I was diagnosed with it in the year: Anemia started 2005; Fatigue and Fibro August 2012

3. But I had symptoms since: 2010

4. The biggest adjustment I’ve had to make is: Sleep schedule, knowing when to stop instead of pushing past my limits

5. Most people assume: It's normal every day aches or old age pains :) or I simply overslept or being lazy

6. The hardest part about mornings are: Getting out of bed.  Sometimes my back hurts so bad I can't do anything but lay there. 

7. My favorite medical TV show is: Right now Grey's Anatomy.  It used to be House when it was on the air.  

8. A gadget I couldn’t live without is: My scanner/adobe type writer; I have issues writing for to long so what I tend to do is scan things I need to write on and use my adobe typewriter to fill in the forms.

9. The hardest part about nights are: Getting comfortable enough to fall asleep or keeping my RLS at bay

10. Each day I take _ 7_ pills & vitamins. (No comments, please. That is including taking 1 pill twice out the day)

11. Regarding alternative treatments I: Am still looking.

12. If I had to choose between an invisible illness or visible I would choose:Actually I probably would prefer an invisible one.  Even with all the trouble of trying to convince someone that you do have a problem.  I would prefer that over them seeing my pain everyday and either feeling sorry for me or it hurting them too seeing my problems.  At least this way I can hide it when I need to (which also causes it's own problems :) ). 

13. Regarding working and career: Hmm, that has been my biggest struggle.  I would like to be further along than I am, but I wonder sometimes if I take on the extra work will I be able to keep up.  Or will my ailment remain at the stage it's at or worsen making it harder to keep up.

14. People would be surprised to know: Anything is wrong with me.  I rarely just let go and lay out not moving.  I try to push through, which on days I fall asleep at the drop of a dime is kinda scary.

15. The hardest thing to accept about my new reality has been:Unpredictability.  I love to plan ahead, but I can't always count on my plans.  

16. Something I never thought I could do with my illness that I did was: Running.  With the pain that I feel and the extreme pain I feel after exercising I didn't think I would be strong enough to even pretend to run, but I do.  And  I love it.  And will keep it up until my body tells me otherwise.

17. The commercials about my illness: Are vague.  I'm glad they are there because then when I say Fibromyalgia or chronic pain people are like "Oh yeah" I heard about that.  But they don't really do it justice.

18. Something I really miss doing since I was diagnosed is: Getting up and just going.  Now getting up is an issue and some days I can't go because I can't wake up.

19. It was really hard to have to give up: Hanging out after the kids are in bed.  That's usually my me time or me and hubby time, but for the most part I usually need too (don't always do what I need) go to bed when they do to function in the mornings.

20. A new hobby I have taken up since my diagnosis is: I haven't fully executed it, but I want to garden.  Actively as mentioned above I've taken up running.

21. If I could have one day of feeling normal again I would: Take the kids somewhere like disney were we would walk around all day, ride rides, eat whatever and do it again the next day.  As it stands if I did that I wouldn't be able to walk either the next day or a few hours into that day.

22. My illness has taught me: Priorities

23. Want to know a secret? One thing people say that gets under my skin is: Just take some tylenol or just get up and move around you'll feel better.

24. But I love it when people: Want to know more and don't blame everything on my ailment

25. My favorite motto, scripture, quote that gets me through tough times is: Of course, God doesn't give you anything you can't handle.

26. When someone is diagnosed I’d like to tell them: Don't think about what you can't do, remember all you can and do what you can until you can't.

27. Something that has surprised me about living with an illness is: How little people know about others.  When I tell people

28. The nicest thing someone did for me when I wasn’t feeling well was: My hubs took the kids out the whole day so I could be alone to sleep, surf the internet or just veg out.

29. I’m involved with Invisible Illness Week because: There are a lot of those who suffer in silence and I was one of them.  I'm not trying to put a sign on my back and say look at me, but look at the illnesses support those with them.

30. The fact that you read this list makes me feel: Happy that maybe you will take interest or show us chronically ill some support.

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