Sunday, March 11, 2018

Pain/Symptom Journal

Middle of 2017 I came to the conclusion that I needed to step up my game and truly keep track of my pain and any random symptoms or issued that I incurred whether it be daily or as it occurred.  So I looked for pain/symptom journals.  I found some that looked ok, I found plenty of 'worksheets' to track stuff, but nothing that was all together and nothing I felt met my needs completely.

So I found a 'worksheet' that had all the information I was requiring but again it was a loose paper and I wanted some type of note book.  One day I found a journal at target that was blank and lined with the word "date" to head all the pages.  It was perfect.  So I took pieces of the worksheet that were combined perfectly and other pieces I rearranged and put into a word document.  I printed this and pasted it to the journal.  Some portions like the little figure to show where the pain is I didn't use daily if I wasn't feeling pain.

Here are examples of my pages:

First is the 'Key' that lists Stressors, symptoms and what it means when I have a number in ( ).

Second is a picture of the book I mentioned and how the page looks will all the information pasted in. 

Monday, October 30, 2017

Walk MS Houston - Nov 5, 2017

Dear Friends and Family,
I recently registered to participate in Walk MS and I'm inviting you to join my team.
Fundraising drives groundbreaking research, provides life-changing services and guarantees a supportive community for those who need it most. Your participation is a powerful step in creating a world free of MS.
Please visit my personal fundraising page to join my team or make a donation. By joining my team, you will be signing up for a great event and an important cause. Each mile we walk, each dollar we raise brings us that much closer to our goal – an end to MS.
I really hope you join my team and support the MS movement.
Thank you!
Click here to visit my personal page.

If the text above does not appear as a clickable link, you can visit the web address:

Click here to view the team page for FightingAgainstInvisibleDiseases - FAID

If the text above does not appear as a clickable link, you can visit the web address:

If you no longer wish to receive email messages sent from your friends on behalf of this organization, please click here or paste this URL into your browser:

Monday, March 13, 2017

Proud to Represent

Did you know that premature birth is the #1 killer of babies in the United States?
I'm on a mission to change that. Our family knows firsthand the challenges of having a baby born too soon. We first started walking in 2008 with our daughter. in 2009 the meaning of the walk became all to real when our first son was born at 20 weeks. Being before V-day (Viability at 24 weeks) he was to little to survive. Eventhough we were already planning to continue to raise funds. I've made it a mission to continue every year.
Join us and walk or donate for all the babies born to soon.
#marchforbabies #whyiwalk

Thursday, March 9, 2017

Invisible symptoms in MS - Momentum Magazine Online

When you have an invisible illness it can be an uphill battle to get others to understand or see what you are going through when what you are going through is unseen.  Check out the article below on how to shine a light on the unseen.

Invisible symptoms in MS - Momentum Magazine Online:

Thursday, May 19, 2016

2016 Put On Purple

Tomorrow is Put On Purple day for Lupus Awareness.  Please show your support, rock your purple even if it's a purple butterfly pinned to your shirt.  Show your love for those dealing with this invisible disease.

Message me your pictures:


Sunday, May 1, 2016

Lupus Awareness

This Lupus Awareness Month, take action in the fight to solve the cruel mystery of lupus. You can join the Lupus Foundation of America in supporting the estimated 1.5 million Americans living with the disease with three easy steps:

1. Educate yourself with these facts about lupus.
     *  Lupus is a complex disease that is hard to define. It strikes without warning, affects each person differently, and has no known causes or cure.
      *  Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
       * Despite the widespread prevalence of lupus, research on the disease has remained underfunded, relative to its scope and devastation.
       * Only one drug has ever been developed specifically to treat lupus and approved by the US Food and Drug Administration.

2. On May 20th, Put on Purple™ raise awareness and show your support for people affected by lupus. Learn more by visiting and submit your photos at

3. Take the KNOW LUPUS challenge at and challenge your friends so that together we can create a future with NO LUPUS.

Monday, March 7, 2016

2015 - 30 Things About My Invisible Illness You May Not Know

30 Things About My Invisible Illness You May Not Know
* The following has changed since 2015, stay tuned for updated "30 Things"

1. The illness I live with is: Anemia, Chronic Fatigue, Fibromyalgia (that I know of)

2. I was diagnosed with it in the year: Anemia started 2005; Fatigue and Fibro August 2012

3. But I had symptoms since: 2010

4. The biggest adjustment I’ve had to make is: Sleep schedule, knowing when to stop instead of pushing past my limits

5. Most people assume: It's normal every day aches or old age pains :) or I simply overslept or being lazy

6. The hardest part about mornings are: Getting out of bed.  Sometimes my back hurts so bad I can't do anything but lay there. 

7. My favorite medical TV show is: Right now Grey's Anatomy.  It used to be House when it was on the air.  

8. A gadget I couldn’t live without is: My scanner/adobe type writer; I have issues writing for to long so what I tend to do is scan things I need to write on and use my adobe typewriter to fill in the forms.

9. The hardest part about nights are: Getting comfortable enough to fall asleep or keeping my RLS at bay

10. Each day I take _ 7_ pills & vitamins. (No comments, please. That is including taking 1 pill twice out the day)

11. Regarding alternative treatments I: Am still looking.

12. If I had to choose between an invisible illness or visible I would choose:Actually I probably would prefer an invisible one.  Even with all the trouble of trying to convince someone that you do have a problem.  I would prefer that over them seeing my pain everyday and either feeling sorry for me or it hurting them too seeing my problems.  At least this way I can hide it when I need to (which also causes it's own problems :) ). 

13. Regarding working and career: Hmm, that has been my biggest struggle.  I would like to be further along than I am, but I wonder sometimes if I take on the extra work will I be able to keep up.  Or will my ailment remain at the stage it's at or worsen making it harder to keep up.

14. People would be surprised to know: Anything is wrong with me.  I rarely just let go and lay out not moving.  I try to push through, which on days I fall asleep at the drop of a dime is kinda scary.

15. The hardest thing to accept about my new reality has been:Unpredictability.  I love to plan ahead, but I can't always count on my plans.  

16. Something I never thought I could do with my illness that I did was: Running.  With the pain that I feel and the extreme pain I feel after exercising I didn't think I would be strong enough to even pretend to run, but I do.  And  I love it.  And will keep it up until my body tells me otherwise.

17. The commercials about my illness: Are vague.  I'm glad they are there because then when I say Fibromyalgia or chronic pain people are like "Oh yeah" I heard about that.  But they don't really do it justice.

18. Something I really miss doing since I was diagnosed is: Getting up and just going.  Now getting up is an issue and some days I can't go because I can't wake up.

19. It was really hard to have to give up: Hanging out after the kids are in bed.  That's usually my me time or me and hubby time, but for the most part I usually need too (don't always do what I need) go to bed when they do to function in the mornings.

20. A new hobby I have taken up since my diagnosis is: I haven't fully executed it, but I want to garden.  Actively as mentioned above I've taken up running.

21. If I could have one day of feeling normal again I would: Take the kids somewhere like disney were we would walk around all day, ride rides, eat whatever and do it again the next day.  As it stands if I did that I wouldn't be able to walk either the next day or a few hours into that day.

22. My illness has taught me: Priorities

23. Want to know a secret? One thing people say that gets under my skin is: Just take some tylenol or just get up and move around you'll feel better.

24. But I love it when people: Want to know more and don't blame everything on my ailment

25. My favorite motto, scripture, quote that gets me through tough times is: Of course, God doesn't give you anything you can't handle.

26. When someone is diagnosed I’d like to tell them: Don't think about what you can't do, remember all you can and do what you can until you can't.

27. Something that has surprised me about living with an illness is: How little people know about others.  When I tell people

28. The nicest thing someone did for me when I wasn’t feeling well was: My hubs took the kids out the whole day so I could be alone to sleep, surf the internet or just veg out.

29. I’m involved with Invisible Illness Week because: There are a lot of those who suffer in silence and I was one of them.  I'm not trying to put a sign on my back and say look at me, but look at the illnesses support those with them.

30. The fact that you read this list makes me feel: Happy that maybe you will take interest or show us chronically ill some support.